About Choices in Transplantation and Sharing
2019 – present
Funder:
National Institutes of Health (NIH)
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
Health Resources and Services Administration (HRSA) through the Division of Transplantation (DOT)
Contact Person:
Rachel E. Patzer, PhD, MPH & Kimberly Jacob Arriola, PhD, MPH
ACTS II
Project ACTS II (About Choices in Transplantation and Sharing) was developed to address barriers to organ and tissue donation among African Americans (AAs) such as lack of knowledge and awareness, concerns about inequalities in the organ allocation system and religious beliefs. The Project ACTS II intervention is implemented in targeted metro-Atlanta areas and uses trained community health workers to reach a goal of 2,000 community members. Project activities will identify to what extent Project ACTS II is effective at increasing registration on the state donor registry in areas that have the highest percentage of AAs and the lowest percentage of donor registration. Project ACTS II is funded by the National Institutes of Health (NIH) and National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK).
Living ACTS
Project Living ACTS is a culturally-sensitive educational tool designed to Living Donor Transplantation among African Americans with End-Stage Kidney Disease. The intervention has been developed using behavioral theory by Dr. Kim Jacob Arriola of Emory University Rollins School of Public Health, and delivered in several formats, including an at home DVD and educational pamphlet, in-person with a trained educator, and online via projectlivingacts.org.
This study uses the developed intervention in a randomized control trial with multiple sites and tests its effectiveness among African American patients who are going through the transplant evaluation process at a transplant center. Partners for this study include Emory Transplant Center (main study site), Augusta University, Piedmont Hospital, and Medical University of South Carolina.
Learn more about relevant background information:
- Patzer RE, McPherson L, Redmond N, DuBay D, Zayas C, Hartmann E, Mulloy L, Perryman J, Pastan S, Arriola KJ. A Culturally Sensitive Web-based Intervention to Improve Living Donor Kidney Transplant Among African Americans. Kidney Int Rep. 2019 May 31;4(9):1285-1295.
- Robinson DH, Arriola KR. Strategies to facilitate organ donation among African Americans. Clin J Am Soc Nephrol. 2015 Feb 6;10(2):177-9.
- Arriola KR, Powell CL, Thompson NJ, Perryman JP, Basu M. Living donor transplant education for African American patients with end-stage renal disease. Prog Transplant. 2014 Dec;24(4):362-70.
SEKTC 