Increasing Access and Reducing Disparities in Access to Transplant in the Southeast Region
Community Engagement to Improve Equity in Kidney Transplantation from the Ground Up: the Southeastern Kidney Transplant Coalition (SEKTC).
ABOUT US
Stakeholders in the kidney disease community collaborated to form the SEKTC.
The SEKTC was formed in 2010 with a mission of increasing kidney transplant rates by identifying and reducing barriers in the kidney transplant process and a vision of improving equity in access to kidney transplantation for kidney disease patients in the Southeast region. While our focus primarily has been on End Stage Renal Disease Network 6 of Georgia, North Carolina, and South Carolina, we have also worked with partners nationally to meet the goals of improving equity in access to kidney transplantation.
CURRENT PROJECTS
Early Steps to Transplant Access Registry
The Early Steps to Transplant Access Registry is a collaborative project among transplant centers to collect data on early steps in the transplant process, including referral to a transplant center and start of the transplant evaluation process, in order to establish a population-based estimate of access to transplantation.
Transplant Referral Exchange
The Transplant Referral Exchange (T-REX) is a partnership with Apex Health Innovations (AHI) to develop an electronic transplant referral application. The application is multi-module, web-enabled software focusing on the collection and management of ESRD patient information.
Resources
- iChoose Kidney: an electronic tool (iOS app and website) to educate patients about the risks of available treatment options for kidney disease. The application compares the risk of survival and mortality on dialysis versus kidney transplantation based on patient’s demographic and clinical history.
- ASCENT website: Educational materials shared as part of multicomponent intervention within U.S. dialysis facilities with low waitlisting to educate leadership, staff, and patients about kidney allocation system changes. Educational materials include:
- Neighborhood Navigator: an interactive tool to connect patients with resources and programs within their neighborhood. The tool provided information on food, housing, transportation, employment aid, legal aid, and financials.
- IPRO Transplant Compare: A mobile app and website that puts patients, families, and caregivers in the driver seat of their transplant journey:
- Allows patients and families to learn about kidney transplant as the preferred treatment option.
- Connects the user with ESRD Network and national resources to aid in transplant education.
- Allows the user to search, filter, and save transplant centers they are interested in.
- Provides transplant center specific information to help with patient transplant center choice; a first of its kind application.
- Allows the user to compare their saved transplant centers to choose the best center for them
SEKTC 